"Before Denis was diagnosed with Apert
syndrome, doctors found many developmental pathologies - cerebral ischemia,
the curvature of the skeleton, the
head of irregular shape,
no nose bridge, he
breathes through a tube in
his sleep, and his fingers and toes crossed
Denis has a sleep
apnea with pauses in breathing up to 10.4
seconds, which is too bad
for anesthesia. Denis
recently started walking holding my hand,
he can not crawl, does not gain weight
2011, he stays at 8 kg
and that's it.
I went to
a charitable foundation "Sacred
Cause" in our city Penza, they promised to call back.
do not have much time
as Denis suffers from headaches at
night because his brain grows, but
his head doesn't...
June 17, 2012 we need to be
in Moscow for a surgery. We
will not be allowed to get the surgery
without a facial distractor. The pins of the distractor will be screwed into
his skull at the sides,
Denis will have to keep it on for 2-3
re-shape his scull. The
distractor costs1.03 million
The money should be collected by May as the
distractor should be assembled and it takes about one month to do so. For us it is unreal
to get so much money. I
have two older sons and I do not work at the moment, my husband has two jobs, but his
salary is small.
The surgery should make Denis looking ordinary.
After that we will need to correct his hands,
probably in three
years, but those are much
smaller sums, and we will be doing
two or four
I was told not to even think about it right now. His
mental develpment should be fine.
Please, help us
to save our son!